WHEREAS, the good health and general well-being of the people of Boaz, Alabama is strengthened by our knowledge and understanding of a little-known genetic disorder known as Cornelia de Lange Syndrome (CdLS); and
WHEREAS, children with CdLS are usually born with low birth weight and develop at a slower rate, both cognitively and physically, and experience many medical complications; and
WHEREAS, dedicated professionals are presently involved in valuable research to explore new therapies and diagnostic tools and to offer hope to children with CdLS; and
WHEREAS, an estimated 20,000 children in the United States have CdLS but remain undiagnosed or without support services; therefore, they miss out on critical medical services and support that can impact their quality of life; and
WHEREAS, Boaz is pleased to join people throughout our nation in promoting a special celebration which seeks to raise awareness of Cornelia de Lange Syndrome, designed to have a positive and productive impact on the lives of all people with CdLS and their caregivers.
NOW, THEREFORE, I, Tim Walker, Mayor of Boaz, Alabama, on behalf of the Council do hereby proclaim May 2009 as Cornelia de Lange Syndrome Awareness month in the City of Boaz.
